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January 2015 / 7 posts found

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27Jan

Labs check today

thowardJanuary 27, 20150 Comments
We went to clinic early this morning trying to get ahead of this winter storm here in Nyc. No transfusion today which is great. He had to get a shot cause his Anc counts were to low. He wasn’t…
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22Jan

Not feeling well today

thowardJanuary 22, 20150 Comments
We are going to clinic today. He has to get a omya tap that’s were they take fluid out of his brain (spinal fluid) counts check for possible transfusion . Since yesterday mid evening he…
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21Jan

Test dose is done. Next week full dose 8h9

thowardJanuary 21, 20150 Comments
Today was once again a long day in the clinic. I would say it was emotional day for both of us. Emotional for me feeling helpless. Just hate watching him endure this. Prestun struggles with this…
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20Jan

Clowning around!

thowardJanuary 20, 20150 Comments
Clowning around before his treatment starts today …. I pray all goes smoothly today …. Good see Prestun clowning around and having fun….
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18Jan

Treatment dose next week

thowardJanuary 18, 20150 Comments
Friday Prestun and I was at the clinic for almost 8 hours. They gave Prestun blood and bag of platelets too. They have decide to go forward . Prestun next week will get his second test dose on…
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14Jan

Treatment is delayed

thowardJanuary 14, 20150 Comments
Prestun treatment has been delay. Today was suppose to be test day for his 8h9. His body is to weak for another hit at the moment. Prestun is currently needing platelets and border line for blood…
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06Jan

MRI results are in

thowardJanuary 6, 20150 Comments
Start out with MRI results. They are clear!!!!!!. So on the 13th Prestun will start his second test dose with his Brain. It’s call 8h9. But today we spent a lot of time in clinic today .…
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