It is past midnight on 9/17/2014 so technically it is Prestuns birthday. He is winding down playing his video game as he does almost every night. We just got back from Dave and Busters again and Rockefeller Center where we ascended tot the top to see a wonderful view of the city. We and many of the families from the Ronald McDonald house were driven in a Police bus to the building. We are going to celebrate with a few friends here today by having a cake and ice cream party at an apartment of a friend here in NY. He is excited to be out of the hospital on his birthday. Looking forward to seeing all the super hero cards that all the kids have sent him.
Today we will also meet with the team. Either tomorrow or the next day he will start his next cycle of chemo for 5 days. They are trying to make sure this cycle of chemo doesn’t make him so sick. But I know each kid is different . I hate this. It …hasn’t been even a week since prestun brain surgery . He has turned 5 today. Not fair cant been normal little boy on his 5 birthday . But I understand we have to keep moving cause I don’t know the cancer to spread. I want him cancer free. I hate Neuroblastoma so much. He still isn’t in a picture mood. I hope that changes tomorrow. It brother’s him. He know he’s is different then others by image and people are staring at him. He is no different to me. He is Prestun and he has been through ringer its sad that people have to stare so much. Please say prayer tomorrow if they start chemo tomorrow and hopefully its easy cycle and inpatient hospital stays. Prestun has had enough.